I wasn't alive when Pearl Harbor was bombed, when Kennedy was assassinated, or when Neil Armstrong walked on the moon.Those are the days that stand out in the history of most of our lives.The cold and cloudy winter day of Friday, January 10, 2003, may not stand out in anyone else's history, but for me, it was the day that would change and define my life. It was the day I first heard the word holoprosencephaly.
Holoprosencephaly. 17 letters and 7 syllables. ho-lo-PROS-en-cef-a-le. We call it HPE for short.
As parents, we all think that we are going to help mold our children and help them to find their purpose in life. In my case, Sammy helped me to find my purpose in life as he opened a new world to me. As a result, I organized a group of other HPE parents, and together, we formed Families for HoPE, Inc. I work full-time as a volunteer for the organization, and I serve as the President of the Board of Directors.
If you live in Indiana and you would like to volunteer to help with various projects to benefit our HoPE families, please contact me at Leslie@FamiliesforHoPE.org.
If Sammy's life has touched your heart and you would like to make a donation in his memory to Families for HoPE, please contact me also.
