www.sammyyammy.com

The life and times of Samuel Aaron Harley

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3/3/08 - I (Leslie) went out of town over the weekend for a girls' weekend. My friend, Heather (Harrison's mom), and I traveled to Bowling Green, Kentucky to meet up with two other friends from Alabama, Marki and Marilyn. All four of us have experienced the death of a child, and we gathered together in a rustic log cabin to share our stories and share our hearts. Although it might sound like a sad experience, it wasn't. Of course, we all talked about our children and experiences, but we also laughed and enjoyed each other's company! It was good.

3/9/08 - As we all prepare for this season of "March Madness", we share a quote by the legendary coach John Wooden. "Things work out best for people who make the best of the way things work out." When it came to Sammy's life, we often said that we were preparing ourselves for the worst but hoping for the best. We could quote the medical statistics of HPE backward and forward, so we were never in denial about the severity of the situation. We're sure that other people probably felt sorry for us, but we never felt sorry for ourselves. We made the best of it, and in return, we had the best time!

3/18/08 - Steve and I were watching American Idol tonight, and the show always makes us think of Sammy. Sammy was born in 2003 during the second season of American Idol. He spent nearly four months in the neonatal ICU where there were no TVs; however, he eventually transferred to the pediatric ICU where he had a private room and his own TV. When we turned on the TV for that first time, American Idol was on.

We began playing music for Sammy while he was in the NICU, and it was obvious that he loved music very much. Each year, we would watch American Idol with him, and he would communicate his appreciation or dislike of a performer in his own unique way. If he disliked the performance, he had seizures. If he enjoyed the performance, no seizures. During the audition rounds when there were so many awful singers, we had to either change the channel or press “Mute” on the remote; otherwise, it would be “seizure-mania”.

In case you were curious, some of Sammy’s favorites over the years have been Carrie Underwood, Kelly Pickler, Melinda Doolittle, and Bucky Covington. This year, I have no idea who Sammy would have liked. Maybe Brooke?

3/31/08 - Did you hear about the Chris Rice concert on April 12 to celebrate Sammy's birthday? We have a block of 40 seats reserved for Sammy's "fan club", so if you're interested in attending the concert with us, let us know ASAP. We are also printing t-shirts for the concert, so if you are unable to attend the concert but would like a SammyYammy.com t-shirt, we will be selling those for $15 each. Sammy's signature photo (the one with the big ol' grin!) will be printed on the front of the t-shirt. Proceeds from the t-shirts will be donated to Families for HoPE, Inc.